Monday, April 25, 2011
Unsolicited Mommy Advice: How to Deal
Tuesday, April 19, 2011
Parent of the Week: Karen
Today we honor Karen, an amazing mother of 3 who shares her story of finding out that one of her daughters had a rare muscle disorder- what that meant for her, her daughter, and the rest of her family. Read on in admiration at her strength, positivity, and confidence in her daughter. It will truly warm your heart.
REMEMBER: If you’d like to be a Parent of the Week, or if you’d like to nominate someone, simply email me at deluna.jamie@gmail.com. It’s that easy!
How truly exciting it was to be asked to be Parent of the Week. Being a mom of three, with one being special needs, I welcome any opportunity to share my story in hope of helping other families and raising awareness.
My name is Karen. My amazing husband and I live in a suburb of Dallas, Texas, and we have three wonderful angels for children. They range in age from 14 to 10 years.
My life drastically changed with the birth of my youngest daughter. Having no warning at all, she was born with a rare muscle disorder called Arthrogryposis Multiplex Congenita (AMC). Unfortunately, she was born with a severe form of it involving fused ribs, fused spine, inability to swallow, and brittle bones. The prognosis was extremely bleak, with the physicians giving her six months to live, tops. Being a Christian woman, and from a wonderful supportive family, I told the doctor ‘thank you for your “prediction”, but I’ll take it from here’. I refused to accept his prediction. We went for five months before I was able to get her an appointment at the amazing Scottish Rite Hospital in Dallas. There, the orthopedist diagnosed her with AMC and filled us in on what the disorder was. I immediately began researching and looking for those familiar with AMC and how to treat it in the best way possible to give her quality of life. It was a long challenging road due to the rarity of the disorder. However, while doing research one night while sitting up with my daughter, I ran across a wonderful website. Low and behold, an actual support group for AMC. I sat and cried and cried. What a relief to finally find others that have experienced all the trials and tribulations I have. From that day forward I have benefited from knowing other families from around the world, sharing ideas, contacts, joys and yes, even sorrows. The support group has become my extended family by all means.
Little did I know that my life would soon require me to do juggling acts. Forty hour work weeks, soccer practices, football practices, parent conferences and the never ending scheduling of seven different physicians, four different therapies and 120 hours a week of nursing schedules, sleep was hard to come by. Somehow though things fell into place, and my children got what they needed.
My oldest two children have had huge adjustments in their lives. From being the babies and having a lot of mom’s attention, to having to “wait their turn” to get attention from mom. The never-ending revolving door of nurses in our home day and night for years had their toll on everyone. However, my children are extremely strong and have learned so much from their little sister, and likewise I’ve learned from my children. The experience has given everyone a whole new view on life; more compassion, care, patience, and a better understanding of what life is like for a disabled child and to be his/her family.
Throughout the years, I have had low times where I asked why God would put us through this? Why he would put my daughter through this? I feel that angels are sent to us in disguise. Maybe to give us a wakeup call, saying ‘hey, you are not on the right path, there is much more for you to do and see’. I truly believe I was sent an angel to teach me, and I am extremely blessed to be one of the chosen ones.
For more information on Arthrogryposis Multiplex Congenita:
Facebook group as Arthrogryposis Multiplex Congenita Support, Inc.
--------------------Karen and past Parents of the Week, feel free to grab the award badge:

Read more...
Monday, April 11, 2011
Helping Children Break Bad Habits
![]() |
| Add caption |
- Figure out what’s behind the behavior - Lots of kids (and adults!) bite their nails or twirl their hair because they are bored are stressed. If this is true for your child, find a positive outlet for the stress or an activity to keep her hands occupied, such as:
- Stress balls
- For girls, get a manicure- having freshly polished nails may make her less likely to mess them up!
- Silly putty
- A note pad and colored pencils
- A few pretty fashion rings
- Remember: kids are still learning – and a booger in your nose is annoying! Even though, as adults, we instinctively reach for a tissue, young children don’t have the mental toolbox to remember even simple alternatives to nose picking like grabbing a tissue.
- Give a gentle reminder. Every time. Even though it’s frustrating to say it 934390589308 times, remind yourself that your child is not picking his nose to spite you.
- Consider purchasing a travel pack of tissues for your child to keep in his pocket (or her purse!).
- Let your child make real choices - Sometimes bad habits reflect your child wanting to be in control in other areas of his life.
- Letting your child make real choices whenever possible will help him feel in control and reduce stress and frustration.
- Let your child have a say in choices such as:
- What to have for meals
- What to wear each day
- Which flavor of toothpaste to use (keep one or two on hand)
- Whether to go to bed at 7:30 or 7:40 ß see this simple way to let your child make a real choice?!
- If you are concerned, seek help
- If you live in the Dallas/Fort Worth area, the UTD Center for Children and Families offers free referrals that will connect you with the right resources for your child. Call 972-883-4827
- The American Psychological Association offers this handy online search tool to locate a provider in your area
Monday, March 28, 2011
Answering the Tough Questions
The tough questions. The questions every parent dreads. You know- the birds and the bees. What happens when you die? Why doesn't my sister have a pee pee? What's the F-word? Here's a quick guide so that you won't get caught off guard!
Read more...
Monday, March 21, 2011
Handling Sibling Rivalry
Monday, March 7, 2011
Helping Kids Handle Losing
- Don't compare. Ever. Comparing your child to other children takes the emphasis off of camaraderie and fun. Even more than that, comparisons set your child up for failure in the future. Don't do it.
- Take the emphasis off of winning all together. Have you ever asked yourself: Why does it have to be about winning in the first place? Even when your child is on the winning end, try concentrating on aspects of activities like teamwork, diligence, and self discipline.
- Help your child set realistic goals for the future. Realistic goals are SMART: specific, measurable, attainable, realistic, and timely. A realistic goal would be to practice the ballet recital dance 15 minutes three times per week. And UNrealistic goal would be to move from level 1 ballet class to level 5 by the end of the year.
Thursday, March 3, 2011
Tough Stuff: Handling the Loss of a Pet
![]() |
| Max, pre snaggle-tooth. He may be looking at you with those sad, SPCA commercial eyes, but I assure you he lived a long, happy, candy-filled life. See how his belly just hangs in the back? Yep. |
- Be sensitive, of course. Let them be upset. Don’t point out reasons why they shouldn’t be upset (he lived a long life, think of all the good times). Save those for a little later, after the upset has had time to sink in.
- Answer tough questions the best you can, but keep age in mind. Questions about death will inevitably come up, but keep in mind that young children don’t require a complicated answer. If you’re religious- ‘She went to Heaven’ may do quite nicely. If not, ‘Well, we’ll bury her in the backyard’ may be a sufficient answer for your youngster. Long, complicated answers may just confuse children more.
- Don’t talk about getting another pet right away. Give your child time to fully grieve the loss.
- In contrast, don’t say, ‘We’re never getting another dog/cat/hamster again!’ This will hurt your child’s feelings and make your child feel like you think the pet was not an important part of the family. Even if you feel this way, keep the feelings to yourself while your child grieves.
Thursday, February 24, 2011
Tough Stuff: When a Parent is in Jail/Prison
- Questions frequently asked by children and suggested answers based on the opinions of early childhood experts and rules of the prison systems
- Dealing with specific emotions children may experience as a result of having an incarcerated parent
- The logistics of staying in touch with incarcerated parents
- Handling the return of a parent from jail or prison
- Self care for caregivers
- A ‘Bill of Rights’ for children of incarcerated parents






